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This is a story detailing my battle with Liver Disease and the events the got me here. It is a story of hope and determination and inspiration.

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Sunday, July 10, 2011

Life on the roller coaster

Addendum
Dear Mr. X,
I am writing to you in reference to the liver transplant evaluation you recently initiated at the blah, blah, blah….
The Multidisciplinary Liver Transplant Committee met on July, 6, 2011 and it was the recommendation of the Committee that your listing with the United Network for Organ Sharing be deferred. The Committee’s recommends are that you should have a consultation with Dr. C. from pulmonary, which has been scheduled.
In the meantime, we will continue to monitor your liver function as you remain under the care of Dr. A and Dr. T.
Blah… blah… blah… blah… blah… blaahhhh……
Blah?!
Either Ellen was a little over zealous in what she was saying or I was I little over zealous in what I was hearing? Fingers crossed and wait to begin the wait.
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8 comments:

  1. AnonymousJuly 10, 2011 at 7:32 AM

    crap...

    ReplyDelete
  2. AnonymousJuly 10, 2011 at 9:09 AM

    sorry... I was so glad to see that you were listed and now this is a big disappointment. Sending thoughts and prayers your way.

    ReplyDelete
  3. ODJuly 10, 2011 at 5:15 PM

    BULLSHIT!

    ReplyDelete
  4. Ken KeseyJuly 10, 2011 at 5:21 PM

    Now, you're either on the bus or off the bus. If you're on the bus, and you get left behind, then you'll find it again. If you're off the bus in the first place — then it won't make a damn.
    -Ken Kesey

    ReplyDelete
  5. Joni MitchellJuly 10, 2011 at 5:30 PM

    If there's one rule to this game
    Everybody's gonna name
    It's, be cool!
    If you're worried or uncertain
    If your feelings are hurtin'
    You're a fool if you can't keep cool
    Charm 'em
    Don't alarm 'em
    Keep things light
    Keep your worries out of sight
    And play it cool
    Play it cool
    Fifty-fifty
    Fire and ice

    If your heart is on the floor
    Cause you've just seen your lover
    Comin' through the door with a new fool--
    Be cool
    Don't get riled
    Smile-keep it light
    Be your own best friend tonight
    And play it cool
    Play it cool
    Fifty-fifty
    Fire and ice

    Don't get jealous
    Don't get over-zealous
    Keep your cool
    Don't whine
    Kiss of that flaky valentine
    You're nobody's fool
    Be cool fool
    Be cool

    ReplyDelete
  6. AnonymousJuly 10, 2011 at 5:59 PM

    Maybe you will just be deferred until you see the pulmonary doc. and it is just a minor blip/delay that will be rectified very quickly. Stay positive as much as you can.

    ReplyDelete
  7. Liver Serum DudeJuly 11, 2011 at 9:20 AM

    Yeah,

    I'm sure its just a blip, tomorrow, I see my GI/Hepatologist and infectious disease specialist.
    August 1st, pulmonologist.

    Cheers,

    The Liver Dude

    ReplyDelete
  8. JenJuly 17, 2011 at 8:18 PM

    What the ?! I am sending all of my positive thoughts your way ... this WILL happen for you.

    ReplyDelete

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