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This is a story detailing my battle with Liver Disease and the events the got me here. It is a story of hope and determination and inspiration.

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Showing posts with label hepatitus c. Show all posts
Showing posts with label hepatitus c. Show all posts

Thursday, June 23, 2011

The Waiting Room

I’ve been sitting in hospital and doctors’ waiting rooms for the last ten years - one pretty much looks and feels like the next. I’ve spent a good amount of time in the one I am sitting in today, so much time I’m sure I’ve lost count of the number of visits. It’s the GI Associates waiting room at Mass Gen; this is where I come to see Doctor A, my Gasteroentologist and Hepatologist. My wife is with me today and we’re meeting Dr. A’s assistant an RN who specializes in the treatment of liver disease.
Tension and anxiety are always part of the emotional process when you’re going to the doctor, and both are especially palatable here. Here, we’re cattle, part of the American medical process, reduced to a blue card with an ID number. The aroma of sterilization and rubbing alcohol blend with the stench of patients. The administrators try to make it as comfortable as possible…decent chairs, soothing colors, Anderson Cooper on the television with poor reception, dog-eared magazines brought in from a clerk’s home, the address labels neatly removed. This is all well and good, but I’m not really interested in reading about what Cleopatra really looked like or the mating rituals of the Ambystoma tigrinum tigrinum (tiger salamander) - although the Berry Summer Salad recipe looks delish and the retrospective on Paula Deen has piqued my interest. But in the end, nothing seems to be able to distract me from my rotting liver and the possibility of being rudely prodded by my Doc’s latex incased finger. Thankfully she knows how much lube to use without leaving me feeling completely violated and greasy. It isn’t my first trip to this rodeo.
All of us here are essentially on a cattle call; we’re either here, waiting to be seen, tested and probably delivered some less than stellar news, or waiting for a procedure - endoscopy, colonoscopy or some other “oscopy” that hopefully I won’t ever have the humiliation of enduring. And if we’re not waiting for a visit behind closed doors, then we’re waiting with someone going behind those doors. Which is worse? Being the patient, or the loved one of the patient, both suffering in their own way and, with any luck, in a dignified manner. We’re a motley crew brought together by one common denominator, a failing organ, a cancer, polyp or tumor. We come from all walks of life, a cross section of our society - you see, fate plays no favorites. So the CEO sits next to the nearly reformed yellowing and listless alcoholic, who sits next to the mother of a hipster crocheting away madly to pass the time and forget; the old man, taking his wife for granted their entire marriage until he realizes at this very moment how much she actually means to him and how lost he’ll be once she’s gone. I feel the worst for those loved ones, waiting patiently and painfully, reassuring their spouses, friends and siblings that everything will be okay.
We all look towards each other for reassurance, weak smiles in between crossword clues and sodukos. It is reminiscent of a sad-eyed dog, which has been negated, waiting on the other side of the front door for that owner who is never going to come home.
So my wife and I sit here, talk about our day, our future and quietly wait to be called.


Friday, June 17, 2011

Head in the Sand

I'm a 47 year old man who has led for a lack of a better description a rock and roll life style and I"m paying for it now. I don't know what my intention for writing this blog is, maybe cathartic, maybe encouraging someone else to seek help before they begin walking down the road I'm currently on or possibly I'm just being self indulgent. For whatever reason, here I go.

About 10 years ago I went to see my PCP, we had a regular check up with the usual chit chat regarding food wine and travel, three of my favorite things. Wine and it's use as a self medication substance as well its distant cousins bourbon, gin and whatever alcoholic beverage might be handy. My life was a vicious circle and I was happy with it, get up, work, drink, sleep and or pass out depending on the amount of alcohol that I was able to choke down that day. A few days after that initial physical my Doc called letting me know there was a problem with my blood tests, come on back and lets do it again. He had slyly set me up with a barrage of blood tests focusing on liver function, viral loads, biliruben and blood cell counts.

Sitting at my make shift desk of a folding table, surrounded by half smoken cigarette butts and half finished bottles of wine and beer, my phone rang. I'm sure I was drinking something, probably half in the bag with nearly a bottle of Rhone in my belly. It was Doc C... "how you doing...", "good...", "I have some bad news...", "yeah....", "You have hepatitus C...".

I wish I could say I lost my breath or my head started spinning or even that I feinted. Nothing happened, he might as well have told me me I had a hang nail, it would of carried more weight.

After explaining to me that Hep C was a blood borne illness that causes inflammation of the liver among other things I took a minute to digest any repercussions this illness might have and replied "Can I still drink?"
"You shouldn't, but a sip here and there probably won't hurt you at this stage of the game."
I thanked him, quietly hung up the phone, finished another bottle of wine, smoked a cigarette and buried my head in the sand for the next ten years.